If there is one thing we have learned with this treatment is that each day is a new "normal". Each day Zack's emotions and physical stature change. As fast as he is sick, he is again well. We too are up and down with his moods, either being his cheerleaders, caregivers or sounding boards. Whatever his needs, we are up to the task.
Frank and I start the day with our usual hustle and bustle. I head out to work at 6:30 am with the idea that Zack will call me if he needs me to return home (a ten minute drive at most) at 9 am to give him another shot. He told us last night that he could handle it himself, but since he is so new to this (like I've been doing it for years?) I wanted to make sure he knew he had backup. Frank heads out next, he too is a big anxious about the shot, but also understands Zack's need to be independent.
It is 8:30 am, I call Zack to make sure he is awake enough to give himself the shot. I had woken him up, He assures me he can take care of it himself, I tell him to call me as soon as he is done. I am concentrating on my work, but in the back of my head I'm waiting for the phone to ring. Millions (maybe billions) of people give themselves shots daily for diabetes, blood clots, etc... But this is my 16 year old son, who up to now has been healthy and taken nothing more than a Tylenol for a headache. Two minutes after 9, the phone rings, it's Zack telling me he did it! He is not thrilled at the idea of sticking a needle in his belly, but you can tell he was proud. I asked how it went and he says "it stung for a second and hurts when putting the medicine in and for about five minutes after." Once we hang up the phone, it hits me. I sneak into the exam room, grab a box of kleenex and have a good cry, Within minutes I stop the crying, wipe my face and head back out to greet our patients.
He picks me up at work, asks if I got the text with the picture and proceeds to tell me about his day. He says his arm is feeling better, we allow him to go to a friends house for a couple of hours with the understanding that he is home by 8:30 for his next shot. At 8:15 he walks in the door. Frank asks if he could give him the shot, he teases and says he would have fun sticking a needle in Zack. Zack looks at him and says "NO!!" but I'll show you how I do it myself. So at 9 pm ( doses are every 12 hours) he lays on our bed, cleans the skin with alcohol and sticks the needle in his belly. He checks to make sure it is not in the muscle and slowly puts in the medicine. To think two days ago, we never even knew about this stuff!
Frank is impressed, tells Zack how proud he is of how he is handling everything and goes to sit on couch to fall asleep to his favorite show (hey it's a long day for him too!). Zack and I decide to tackle more of his room and as I start to put out his childhood nicknacks , he is setting up his stereo record player that was Grandpa's. He is so proud of receiving that as a gift along with many records. I hang out with him until about 10 and then melt into bed to write my blog. He comes in and is reading over my shoulder. "Hey Mom, you got all this pretty much accurate, good job!" Hey if He's Happy with it, so am I!
All in all a great day filled with many blessings!
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