Zack and I settle in. He is watching a show on football. At first he thought it was a movie, but soon realized it was in fact a documentary. He became so engrossed he asked me to join him. "Undefeated" as it turns out, won an Academy Award in 2011. It is a documentary of an underdog football team who look to reverse their fortunes with coach Bill Courtney. I would highly recommend watching it, even if you don't like sports, it's amazing to see how these kids lives are turned around, by a handful of loving, caring people. THIS is what it's all about!! What we can do for others!!
Rhonda stops by so we can have a quick dinner downstairs, I'm not really in a talking mood tonight, with every word I am angry, frustrated and want to just cry. I am second guessing everything I do for Zack. Were we right to send him to the Monster Truck Show, did I get him here fast enough, am I right in trusting all they are doing for them, are they doing enough for him and fast enough, is there a question I didn't ask, or a test I should have demanded. We did find out later that Zack could not have gotten sick this quickly from the show, this has been gradually working into an infection.
Karen, our social worker from the Cancer Center comes in to visit for awhile. Zack is sitting in the chair and in good spirits. He is talkative, but soon realizes that it comes with the consequences of coughing. He tries to eat a little danish, but after two bites, gives up. I received a bill from the Hospital for one of the Hospital stays last December and it shows that we owe $9,000. Knowing that the deductible and out of pocket has been met I freaked out. Since I am not home and left a lot of the paperwork there, I ask Karen if she can get me a print out of that day / week of services so I can determine what the problem is. I'm hoping it is a billing error, but one never knows. Insurance doesn't guarantee they will pay everything! She returns with the printout from "their" orders and offers to help should they need to fax anything to me, by bringing it back to the hospital. Luckily, I find the insurance website and look up the Explanation of Benefits (EOB). Though it is still not clear, I can make the necessary phone calls tomorrow and hopefully figure it all out.
Dr. OB is on call today and comes in with confirmation that Zack does indeed have pneumonia. They fear it is fungal by the looks of the scans. They also did a CT of his sinuses and he has all but one area that is clogged. Though this is considered "normal" for one under the type of strict protocol treatment, it is still a concern. The good news is they now know what medicine to give him for his sinus infection. I make a comment about wishing Drs. Steve or Nancy could be here with their activators. (we had an ice storm last night so everyone is grounded) Dr. OB asks what that is and what is done with it. I proceed to explain how it helps to relieve the pressure on the sinus when used in specific areas of the face and the sinus in most cases open up and drain. He is fascinated with this and says "hey if it works" to which I reply "it does!!!" Like I said, there are many things out there that work!! I further explain that since working for the Cagens I have not had to take sinus medication and I used to have to take it every year!! The Dr. then tells us he has contacted one of the best Drs to do a Bronchoscopy . He tells us that Zack is not to drink or eat after midnight tonight and the test will be done at 11 tomorrow. He will be given anesthesia during this and once done and several biopsies are performed they will know exactly if it is viral, fungal or bacterial. They will then move right into the proper treatment. (A bronchoscope is a device used to see the inside of the airways and lungs. Although it can be flexible or rigid, a flexible bronchoscope is almost always used. The flexible bronchoscope is a tube less than 1/2 inch wide and about 2 feet long. Rarely, a rigid bronchoscope is used. The scope is passed through your mouth or nose, through your windpipe (trachea), and then into your lungs. Going through the nose is a good way to look at the upper airways. The mouth method allows the doctor to use a larger bronchoscope.) They will go through his mouth.